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Patients Capacity Building Workshop & TIF General Assembly 2026
A three‑day TIF programme empowering patient leaders and associations with the skills, strategy, and influence needed to strengthen organisations and drive meaningful change in thalassaemia and sickle cell care.
20 Nov 2026 - 22 Nov 2026
Key Highlights
Capacity Building Programme: Three day intensive training for patient advocates and association leaders.
Expert Led Workshops: Interactive sessions with global specialists in advocacy, policy, and organisational development.
Strategic Advocacy & Leadership: Skills in policy influence, communication excellence, and patient centred leadership.
Global Networking & Knowledge Exchange: Connect with peer associations, clinical reference centres, and TIF's international network
About the Event
The Patient & Associations Capacity Building Workshop 2026 is a flagship initiative of the Thalassaemia International Federation (TIF), designed to strengthen the leadership, advocacy, and organisational capabilities of patient associations worldwide. Held in Athens from 20–22 November 2026, this three‑day programme brings together representatives from TIF’s global network for an intensive learning experience focused on impact, collaboration, and sustainable growth.
Expected attendees
Leaders and representatives from national thalassaemia and sickle cell disease associations, emerging advocates, expert patients, and healthcare partners committed to improving patient centred care across diverse health systems.Key themes
Advocacy & policy influence, organisational excellence, leadership & communication, patient centred care integration, and digital transformation for stronger, more resilient patient associations.Who should attend
Association board members, executive directors, patient advocates, young leaders, healthcare coordinators, and TIF member representatives preparing for deeper engagement in national and international advocacy.Venue Highlight
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Meet the Organizers
The organisations responsible for the vision, planning, and delivery of this conference.
Thalassaemia International Federation
Official Event OrganiserConnect. Learn. Lead.
Join TIF’s international community of patient advocates shaping better care worldwide.
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